Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome
by Jennifer Graf Groneberg
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Book Summary Information
Author: Jennifer Graf GronebergEdition: Paperback
Audio: English (Original Language); English (Unknown); English (Published)
Published: 2008-04-01
ISBN: 0451222954
Number of pages: 304
Publisher: NAL Trade
Book Reviews of Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome
Book Review: Great Book For Everyone, Not Just Down Syndrome People
Summary: 5 Stars
Nobody in my family has Down syndrome, but I still found this book to be well written. It is not a how to book, it is simply the experiences of a mother who was surprised at birth with premies, including one premie with Down Syndrome. It is not a happy happy uplifting I'm so grateful for all my blessings book but it is an honest story of the work, the shock, the complicated set of feelings, the processing of said feeling, and the reactions of friends and family. I was left with a determination to keep up with this family and especially darling Avery.
How I wish that the young people I work with could read this book and realize that a child is not a cute toy to dress up, but a human being that may have profound needs, or at any rate special needs, and that they need to build a firmer support system and gain maturity before throwing that B/C away.
PS If you're reading this, former neighbor who shunned the family as if Down is as easy to catch as chicken pox, your cruelty shocks me.
Summary of Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome
An exceptional memoir that provides emotional insight and practical advice.It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast...
When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.
Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.
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