Down Syndrome: the Facts
by Mark Selikowitz
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Book Summary Information
Author: Mark SelikowitzEdition: Paperback
Audio: English (Original Language); English (Unknown); English (Published)
Published: 1997-01-15
ISBN: 0192626620
Number of pages: 208
Publisher: Oxford University Press, USA
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Book Reviews of Down Syndrome: the Facts
Book Review: Buy a different book!!
Summary: 1 Stars
I read this book yesterday at the library and found the author to be spineless, inhumane and downright mean. This person should have never written this book!!
The beginning of the book explains the many emotions parents, siblings, grandparents etc. may experience when faced with a Down syndrome diagnoses, but the advise given is from the heart of a man who couldn't go into the nursery to see or touch his baby for three days simply because she has DS. An extra chromosome 21 does not render a person unlovable or contagious. The author does assure the reader that love will blossom but it could take some time. There's nothing wrong with that advice but a serious attitude adjustment is in order. I understand not everyone's reactions are the same but a loving heart is a loving heart even if it may be paralyzed for a bit by shock or other emotions. This author's poor daughter needed to be hugged and kissed and cuddled by her dad. His actions shouldn't have been guided by his emotions. He should have seen to the baby's needs and let his emotions catch up with his obligation to care for his baby. I dealt with my emotions when my son was diagnosed with DS. In my eyes he's the cutest most wonderful baby on the planet as were my other children when they were the babe in my arms.
The book goes on to explain that siblings may have negative feelings toward the sibling with DS. The author suggests that you let the siblings know that they will not be responsible for the care of the sibling with DS after the parents are no longer able to. GRRRR!! Siblings should want to support each other whether they have DS or not. For the brother or sister with DS it may be visiting at an assisted living facility or opening up an extra bedroom. My younger brother was born with DS and we always knew he needed more care and attention than the rest of us. We gave it willing. We were just dealt a different hand than other families.
The author wants parents to help their children deal with taunts about their sibling with DS by allowing the child to take it out on the parents. What?!!! Subtract DS from the equation and see how to deal with taunting and teasing. It's the same situation when DS is added back in.
The book includes the same clinical information about DS as any other book so it's no goldmine of knowledge.
The author explains the prenatal tests available to detect DS. There is a warning about the possibility of a miscarriage but concludes that parents are going to have to decide for themselves if they would terminate the pregnancy if DS is detected. I would have loved to read that the author found such joy in raising a daughter with DS that he encourages parents to see past societies shallowness and love their baby but the author never does.
I know I'm a better person because I had the privilege of being touched by DS. I'm the mother and the sister of wonderful people, two of them have an extra chromosome.
I wish I could impress upon every man, woman and child that DS is not a curse. This book doesn't do anything to bring that wish to fruition.
Summary of Down Syndrome: the Facts
Dr. Mark Selikowitz, a consultant paediatrician, has drawn on his extensive experience with children with Down syndrome to write this sympathetic and authoritative book, widely regarded as the definitive guide for parents. In this new edition, he looks at the many new opportunities that have appeared over the past few years in the educational, social, and employment spheres for people with Down syndrome. These have been accompanied by favorable changes in community attitudes. A particularly encouraging development is the greater attention paid to the wishes of people with Down syndrome. The book offers advice and reassurance to these people and provides an essential guide to their parents and the many health workers who come in contact with Down syndrome children and adults.General Books
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